Not himself today

Greyson hasn't been himself for the past few days. Yesterday was really rocky with lots of destats, some of which were really deep. Today wasn't as bed, but he still wasn't acting like himself. I sat with him for several hours and he only fluttered open his eyes a few times - the rest of the time he fitfully slept. He clearly looked uncomfortable. He also wouldn't nurse. He wouldn't even open his mouth. I spoke to the doctor about this and she decided to run some blood work to see if he is coming down with something.

They took a chest x-ray yesterday and it was clear so we know it is not a respiratory thing (thank goodness). And he is still off the cannula, it's now been over 48 hours so chances are it will stay off! So that is my silver lining.

Just to rule out a cow's milk allergy I'm cutting out all milk from my diet. This is extremely hard because a glass of milk is my snack of choice. Since I spend so much time in the NICU where food or drinks are not allowed except in the parents room I haven't been eating as much as I should. And in the parents room the only provided snacks are crackers that contain soy (out), milk (which was in, but is now out), soda - mainly diet (which is out because drinking anything with artificial sweeteners gives me an immediate headache), and peanut butter! (which is so out that sometimes I don't even go into the room because it smells like PB). So with those kind of options I've been letting way too much time pass between meals. Milk was my back-up, now I'm going to have to find something else. But if finding a new snack will help my baby feel better I'm happy to do it.

He really looked pathetic today and it made me sad that I couldn't make him feel better. Here's hoping we get all this figured out soon so that Greyson can feel better and come home.